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Mary F. E. Ebeling

    Afterlives of Data
    Healthcare and Big Data
    • Healthcare and Big Data

      Digital Specters and Phantom Objects

      • 184 páginas
      • 7 horas de lectura

      Exploring the intersection of healthcare and data privacy, the book presents a first-person noir narrative where the author, a sociologist, acts as a detective investigating the trade of personal health information. It uncovers how patient data is transformed into consumer profiles sold to marketers, revealing the processes of the data broker industry. The narrative highlights the implications of these "data phantoms" on patient privacy and the potential harm they can inflict, making it a thought-provoking examination of Big Data's impact on healthcare.

      Healthcare and Big Data
    • Introduction: data lives on -- Tracing life through data -- Building trust where data divides -- Collecting life -- Mobilizing alternative data -- On scoring life -- Data visibilities -- Epilogue: afterlife.

      Afterlives of Data